It is our pleasure to inform you about 1st Craniofacial Centre Nepal, Janakpur dham. Janakpur is situated south east of Nepal with catchment area of 5 million population of Nepal and similar population of North Bihar, India.
Our vision for craniofacial centre is to improve the lives of, and create equal opportunities for people who have been born with craniofacial abnormalities who cannot access the surgery they need.
There is no formal provision or designated centre for cleft and craniofacial anomalies in south east of Nepal. Some uncoordinated surgery is carried out by untrained private practitioners, and for a few fortunate people, there may be access to services in other countries. For most this surgery is not accessible, and they live with deformities affecting facial appearance, hearing, speech and psychosocial problems. This usually means not being able to participate in the normal activities of life. Often, schooling is not possible because the family do not wish to be further stigmatised or for their child to be traumatised by public appearance. It is important that a facility such as the Craniofacial Centre is established to reduce the burden of disease – a burden on the patient, their family and the state.
This lack of care was quantified in the Lancet Commission on Global Surgery (2015), and states that five billion people do not have access to safe, affordable surgical and anaesthesia care when needed. Access is worst in low-income and lower-middle-income countries (LMIC), where nine out of ten people cannot access basic surgical care.
Failure to access surgical and anaesthetic facilities in LMIC’s represents a major burden on the patient, the family and the state.
We propose to build a high-end surgical service, which will facilitate training for young surgeons, anaesthetists, speech therapists and community health workers. It is anticipated that the first year of the project would see the establishment of a fully equipped centre and training of required staff to include the first surgeon, a speech therapist, two nurses, a social worker and other administrative, clerical and cleaning staff. Training will take place both locally and as part of scholarship programme at the established centre in India. The first treatments would begin as soon as trained staffs are in place during the first year. The second year would see an increase in treatments and after-care provision as more trained staffs are available and the service becomes established and trusted in the local communities.
The aims is to establish a first class fully comprehensive and accessible centre for the treatment of people with cleft and craniofacial anomalies and associated problems and training of the local medical and allied medical professionals. Treatment will mean the regeneration of the lives of people who have been treated, their employment status and their income contribution to their families and to the economy and community. The opportunity for children to go on to education and live normal lives will be greatly enhanced. Wthin two years, we will see:
1. Establishment of a hospital–based service providing full facilities for out-patient and in-patient treatment in a safe environment, with fully trained surgeons and anaesthetists and allied professionals
2. This service will be free of charge to the majority of patients but in cases where they are willing and able to pay, for example, for some privacy, the money will be used to progressively reduce overall running costs going, in particular, towards training
We do have list of visiting faculties from Oral & Maxillofacial Surgery, ENT, Neurosurgeon, Paediatrician, Orthodontist, Pedodontist, Prosthodontics and other allied professionals.
It will be charitable, non-profitable and selfsustanable organisation in this part of world. We will be providing best quality care to local communities by expert clinician from Nepal and around the globe.
We will establish training fellowships for local doctors and dentists and other allied professionals, offering the opportunity to acquire appropriate expertise.
We would like to extend our hand to join us in establishment of the Craniofacial Center Nepal by providing support in teaching training and clinical activities.